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Final Program


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  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    Patient Perspectives Poster
    Patient engagement/self-management
     CME 0 hours
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP01: An OCEAN of Change: The Impact of an RA Diagnosis on My Big Five Personality Traits
    Patient Poster Presenter: Laura Sambursky, BS, MA (she/her/hers) – Patient
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP02: Living Well with a Rare Rheumatic Disease – Becoming a “Precision” Patient on the Horizon of Precision Medicine
    Patient Poster Presenter: Ida Hakkarinen, -None- (she/her/hers) – self (patient)
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP03: How Completing a Systematic Literature Review Improved How I Research My Own Rheumatoid Arthritis and Comorbidities
    Patient Poster Presenter: Shelley Fritz, MS (she/her/hers) – Global Healthy Living Foundation
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP04: Involving Pediatric Patients in Their Own Care
    Patient Poster Presenter: Whitney Carter, BA (she/her/hers) – Lupus and Allied Diseases Association
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP05: Reunion with Forgotten Relationships and Memories
    Patient Poster Presenter: Noriko Okochi, PhD – Rheumatic Disease and Vasculitis Support Network Japan
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP06: Sweat It Out: How the Sauna Has Helped Me Cope with Rheumatoid Arthritis
    Patient Poster Presenter: Eileen Davidson, -None- – Arthritis Research Canada
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP07: My Journey with Diffuse Scleroderma and Interstitial Lung Disease: A Pharmacist’s Perspective
    Patient Poster Presenter: Joseph Washington, PharmD (he/him/his) – Cencora
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP08: Whispers of Resilience: Navigating Life with Rheumatism
    Patient Poster Presenter: Vinchelle Hardison, MD – Children's Hospital of Philadelphia
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP09: Finding the Balance: Regaining My Strength While Living with Sjögren’s & POTS
    Patient Poster Presenter: Matt Makara, MPH – Sjogren's Foundation
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP10: Walking Away from Arthritis Pain: Exercise Helped Me Manage Sarcoidosis and Osteoarthritis Physically and Emotionally
    Patient Poster Presenter: Bridget Kelly, BA – Hospital for Special Surgery
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP11: Living Well with Chronic Illness: Decades with MCTD
    Patient Poster Presenter: Carol KAMINSKI, BS (she/her/hers) – HP (Hewlett Packard) Retired
    Patient engagement/self-management
  • Saturday, Nov 16th
    10:30 AM – 12:30 AM Eastern Time
    PP12: Healing Together: The Role of Black, Indigenous and People of Color (BIPOC) -Only Chronic Illness Spaces in Comprehensive Care
    Patient Poster Presenter: JP Summers, -None- (she/her/hers) – Global Healthy Living Foundation
    Patient engagement/self-management
  • Saturday, Nov 16th
    3:00 PM – 4:00 PM Eastern Time
    16S58: Patient Perspectives
    Location: Room 152A
    Moderator: Puja Khanna, MD, MPH (she/her/hers) – University of Michigan
    Patient engagement/self-management
     CME 1 hours
  • Saturday, Nov 16th
    3:00 PM – 3:15 PM Eastern Time
    PP13: Bridging the Gap from Pediatric to Adult Rheumatology Care
    Location: Room 152A
    Patient Presenter: Natasha Trehan, BSc (she/her/hers) – University of Ottawa, Take a Pain Check Foundation
    Patient engagement/self-management
  • Saturday, Nov 16th
    3:15 PM – 3:30 PM Eastern Time
    PP14: Support Groups and Chronic Illness: Finding Social Support Among Peers
    Location: Room 152A
    Patient Presenter: Alexandra Blumhorst, BS (she/her/hers) – Looms for Lupus
    Patient engagement/self-management
  • Saturday, Nov 16th
    3:30 PM – 3:45 PM Eastern Time
    PP15: Breathing Mindfully and How to Control Anxiety in Lupus Patients
    Location: Room 152A
    Patient Presenter: Amanda Greene, BA (she/her/hers) – Lupus Research Alliance
    Patient engagement/self-management
  • Saturday, Nov 16th
    3:45 PM – 4:00 PM Eastern Time
    PP16: Utilization of My Knee Notes for Enhanced Healthcare Management
    Location: Room 152A
    Patient Presenter: Tien Sydnor-Campbell, MS – Medically Retired
    Patient engagement/self-management
  • Monday, Nov 18th
    10:30 AM – 11:30 AM Eastern Time
    18M20: Bringing OT Back into the Rheum: Approaches to Utilizing Occupational Therapy in Rheumatology Care
    Location: Room 146C
    Moderator: Nancy Baker, OT, MPH, ScD – Tufts University
    Moderator: Susan Murphy, OT, ScD – University of Michigan
    Patient engagement/self-management
     CME 1 hours
  • Monday, Nov 18th
    10:30 AM – 10:50 AM Eastern Time
    Occupational Therapists on the Rheum Team: Beyond the Hand and Upper Extremity
    Location: Room 146C
    Speaker: Janet Poole, PhD, OT, FAOTA – University of New Mexico
    Patient engagement/self-management
  • Monday, Nov 18th
    10:50 AM – 11:10 AM Eastern Time
    Utilizing an Occupational Therapy Lens to Equip Rheum Patients with the Tools to Problem Solve in Daily Life
    Location: Room 146C
    Speaker: Madelyn Cabrera, OT – University of St. Augustine for Health Sciences
    Patient engagement/self-management
  • Monday, Nov 18th
    11:10 AM – 11:30 AM Eastern Time
    Thinking Outside of the Rheum Box: Developing a Successful Arthritis Program Referral System in Rheumatology
    Location: Room 146C
    Speaker: Rebecca Gillett, MS,OT – Insight Wellness, LLC
    Patient engagement/self-management
  • Tuesday, Nov 19th
    11:00 AM – 12:30 PM Eastern Time
    19T11: Leveraging the Patient Voice to Improve Clinical Care and Rheumatology Research
    Location: Room 146C
    Moderator: Kaleb Michaud, PhD (he/him/his) – University of Nebraska Medical Center
    Patient engagement/self-management
     CME 1.5 hours
  • Tuesday, Nov 19th
    11:00 AM – 11:30 AM Eastern Time
    How Do Patient-Facing Organizations Enhance Clinical Care?
    Location: Room 146C
    Speaker: Christele Felix, -None- – LupusChat
    Patient engagement/self-management
  • Tuesday, Nov 19th
    11:30 AM – 12:00 PM Eastern Time
    Involving Patients in Research: The Researcher Perspective
    Location: Room 146C
    Speaker: Julia Simard, MSc, ScD (she/her/hers) – Stanford School of Medicine
    Patient engagement/self-management
  • Tuesday, Nov 19th
    12:00 PM – 12:30 PM Eastern Time
    How Does a Patient Partner Get Involved When They Do Not Have an Academic Background?
    Location: Room 146C
    Speaker: Eileen Davidson, -None- – Arthritis Research Canada
    Patient engagement/self-management